Posted by Administrator on June 9, 2011
A 15 year old girl from Cumbria has become famous after creating a blog containing a ‘bucket list’.
Alice Pyne suffers from Hodgkin’s Lymphoma, and there is very little that doctors can do to prevent it from spreading further. As a result, Alice created a private blog to share with family and friends, so she could update everyone with pictures as she completed her aims.
The list contains a variety of ‘normal’ activities, such as visiting Cadbury World, staying in the Chocolate room at Alton Towers, having her hair done, photoshoots and whale watching, alongside things Alice wanted to do but now cannot, such as visiting Kenya and becoming a dolphin trainer.
When she was diagnosed with the disease four years ago, Alice began campaigning to get people to join the bone marrow register. She has helped to get 1,100 donors to sign up, and at the very top of her to-do list to add more.
Her blog was found by online visitors who began leaving comments, and soon was a talking point among social networking such as Twitter and Facebook. Last night, ‘Alicebucketlist’ was a trending hashtag, and Alice even got a mention from UK Prime Minister David Cameron.
“I’m very sorry to hear about the situation facing Alice, and what she is going through. We want to get as many people on the bone marrow register as possible.”
Many of her dreams appear likely to come true – comments on her blog reveal that Cadbury World have offered her four tickets, and many photographers and home owners were offering help to achieve her other dreams. There was even discussion on how to make some of her more unlikely dreams come true – Alice can’t leave the country to go to Kenya, so many people are plotting on how to bring Kenya to Alice.
Alice and her sister, Milly, who suffers from Crouzon’s Syndrome, can both be contacted through the Post Pals website too.
Posted in Charity, Kenya | Comments Off on 15 year old Lymphoma sufferer touches hearts with bucket list
Posted by Administrator on December 18, 2010
This is the video my new Christmas song – “One Last Christmas.” This song is inspired by the true story of the Locke family and their son Dax.
At just thirteen months old, little Dax was diagnosed with a rare form of Leukemia. He was given two bone marrow transplants as a part of emergency treatment; one from each of his parents. The doctors then told his parents that Dax would most likely not make it to see Christmas.
This song is about the love of a family, and the coming together of an entire community to make sure that this little boy could have one last Christmas. His dad, determined that his son would see Christmas, put up the decorations early. The neighborhood caught on, and did the same. The whole town soon followed suit. A website was built telling his story. Soon, pictures were sent from all over the world of Christmas decorations that had been put up in his honor.
Dax did lose his battle with Leukemia, but not before he got to see one last Christmas. Today, this little boy’s legacy lives on, and his parents are making sure it does. They were so touched by the care they received from St. Jude’s Children’s Research Hospital, that they now have a desire to raise enough money to run the entire hospital for one day in honor of their son, Dax. The total cost to run St. Jude’s for one day is $1.6 million dollars. Already, they have raised a quarter of a million dollars.
This Christmas, it is on my heart to join forces with the Locke family, and help them in their cause. I would like to encourage you to join us in raising money that will go to an amazing cause in St. Jude’s Children’s Research Hospital that cares for so many children each year.
You can now get this video by donating at:
Together, we can reach this goal — and fund St. Jude’s for an entire day in Dax Locke’s memory!
THE VIDEO IN MEMORY OF LITTLE DAX
Posted in Announcements, Charity | Comments Off on HELP SPREAD A CHRISTMAS CHEER FOR CHILD IN A CHILDREN’S HOME